By Professor Claire Elizabeth Wakefield

Journal articles

Kelada L; Wakefield CE; Carlson L; Hetherington K; McGill BC; McCarthy MC; Miles G; Cohn RJ; Sansom-Daly UM, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ; Fardell J; Foreman T; Girgis A; Signorelli C; Ellis S, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Young AL; Butow PN; Rhodes P; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Talking across generations: Family communication about BRCA1 and BRCA2 genetic cancer risk', Journal of Genetic Counseling, 28, pp. 516 - 532, http://dx.doi.org/10.1002/jgc4.1055

Darlington AS; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J, 2019, 'Parents’ experiences of requests for organ and tissue donation: the value of asking', Archives of Disease in Childhood, 104, pp. 837 - 843, http://dx.doi.org/10.1136/archdischild-2018-316382

Goddard E; Cohen J; Bramley L; Wakefield CE; Beck EJ, 2019, 'Dietary intake and diet quality in children receiving treatment for cancer', Nutrition Reviews, 77, pp. 267 - 277, http://dx.doi.org/10.1093/nutrit/nuy069

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K; Wakefield C; Signorelli C; Thornton E, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ; Gok C, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

Signorelli C; Wakefield CE; Fardell JE; Brierley ME; Darlington AS; Williamson J; Downie P; Cohn RJ, 2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934

Vetsch J; Wakefield CE; Doolan EL; Signorelli C; McGill BM; Moore L; Techakesari P; Pieters R; Patenaude AF; McCarthy M; Cohn RJ; Wakefield C; Cohn R; Girgis A; McLoone J; Fardell J, 2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600

Donovan LA; Wakefield CE; Russell V; Hetherington K; Cohn RJ, 2019, 'Brief report: Bereaved parents informing research design: The place of a pilot study', Death Studies, 43, pp. 62 - 69, http://dx.doi.org/10.1080/07481187.2018.1436616

Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136

Touyz LM; Cohen J; Cohn RJ; Garnett SP; Anazodo A; Gohil P; Grech AM; Ng A; Wakefield CE, 2019, 'Childhood cancer survivors report preferring lifestyle interventions delivered in person rather than online: An adolescent and parent perspective', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27922

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Grimmett C; Brooks C; Recio-Saucedo A; Armstrong A; Cutress RI; Gareth Evans D; Copson E; Turner L; Meiser B; Wakefield CE; Eccles D; Foster C, 2019, 'Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations', Supportive Care in Cancer, 27, pp. 297 - 309, http://dx.doi.org/10.1007/s00520-018-4307-x

Warby M; Wakefield CE; Vetsch J; Tucker KM, 2019, 'Families’ and health care professionals’ attitudes towards Li-Fraumeni syndrome testing in children: A systematic review', Clinical Genetics, 95, pp. 140 - 150, http://dx.doi.org/10.1111/cge.13442

Vetsch J; Wakefield CE; Duve E; McGill BC; Warby M; Tucker KM; Malkin D; Lau L; Ziegler DS, 2019, 'Parents', health care professionals', and scientists' experiences of a precision medicine pilot trial for patients with high-risk childhood cancer: A qualitative study', JCO Precision Oncology, 3, pp. 1 - 11, http://dx.doi.org/10.1200/PO.19.00235

Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856

Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care', Ebiomedicine, 37, pp. 205 - 213, http://dx.doi.org/10.1016/j.ebiom.2018.10.060

Janin MMH; Ellis SJ; Wakefield CE; Fardell JE, 2018, 'Talking about Cancer among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 7, pp. 515 - 524, http://dx.doi.org/10.1089/jayao.2017.0131

Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157

Janin MMH; Ellis SJ; Lum A; Wakefield CE; Fardell JE, 2018, 'Parents’ Perspectives on Their Child's Social Experience in the Context of Childhood Chronic Illness: A Qualitative Study', Journal of Pediatric Nursing, 42, pp. e10 - e18, http://dx.doi.org/10.1016/j.pedn.2018.06.010

Nandakumar BS; Fardell JE; Wakefield CE; Signorelli C; McLoone JK; Skeen J; Maguire AM; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Emery J; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KF; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ; Tucker K, 2018, 'Protocol for the avatar acceptability study: A multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand', BMJ Open, 8, pp. e024064, http://dx.doi.org/10.1136/bmjopen-2018-024064

Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001

Gan LL; Lum A; Wakefield CE; Donnan BM; Marshall GM; Burns MA; Jaffe A; Leach S; Lemberg DA; Fardell JE, 2018, 'The School Experiences of Siblings of Children with Chronic Illness: Australian Parents' Perceptions', Educational and Developmental Psychologist, 35, pp. 36 - 50, http://dx.doi.org/10.1017/edp.2018.3

Vetsch J; Wakefield CE; Warby M; Tucker K; Patterson P; McGill BC; Metcalfe A; Cohn RJ; Fardell JE, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102

Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5

Touyz L; Cohen J; Wakefield C; Grech A; Garnett S; Gohil P; Cohn R, 2018, 'Design and rationale for a parent-led intervention to increase fruit and vegetable intake in young childhood cancer survivors (reboot): Protocol for a pilot study', Jmir Research Protocols, 20, http://dx.doi.org/10.2196/resprot.9252

Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', Jmir Research Protocols, 7, pp. e119, http://dx.doi.org/10.2196/resprot.9258

Wakefield CE; Quinn VF; Fardell JE; Signorelli C; Tucker KM; Patenaude AF; Malkin D; Walwyn T; Alvaro F; Cohn RJ, 2018, 'Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26923

Fardell JE; Wakefield CE; Patterson P; Lum A; Cohn RJ; Pini SA; Sansom-Daly UM, 2018, 'Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research', Journal of Adolescent and Young Adult Oncology, 7, pp. 143 - 147, http://dx.doi.org/10.1089/jayao.2017.0086

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; Brierley MEE; Thornton-Benko E; Foreman T; Webber K; Wallace WH; Cohn RJ; Thornton E, 2018, 'Re-engage' pilot study protocol: A nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors', BMJ Open, 8, pp. e022269, http://dx.doi.org/10.1136/bmjopen-2018-022269

Clifford BK; Mizrahi D; Sandler CX; Barry BK; Simar D; Wakefield CE; Goldstein D, 2018, 'Barriers and facilitators of exercise experienced by cancer survivors: a mixed methods systematic review', Supportive Care in Cancer, 26, pp. 685 - 700, http://dx.doi.org/10.1007/s00520-017-3964-5

Touyz LM; Wakefield CE; Grech AM; Quinn VF; Costa DSJ; Zhang FF; Cohn RJ; Sajeev M; Cohen J, 2018, 'Parent-targeted home-based interventions for increasing fruit and vegetable intake in children: A systematic review and meta-analysis', Nutrition Reviews, 76, pp. 154 - 173, http://dx.doi.org/10.1093/nutrit/nux066

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Grant DM; Signorelli C, 2018, 'The Psychosocial Experiences and Needs of Children Undergoing Surgery and Their Parents: A Systematic Review', Journal of Pediatric Health Care, 32, pp. 133 - 149, http://dx.doi.org/10.1016/j.pedhc.2017.08.003

Vetsch J; Wakefield CE; McGill BC; Cohn RJ; Ellis SJ; Stefanic N; Sawyer SM; Zebrack B; Sansom-Daly UM, 2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525

Fardell JE; Patterson P; Wakefield CE; Signorelli C; Cohn R; Anazodo A; Zebrack B; Sansom-Daly U, 2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100

Signorelli C; Wakefield CE; Fardell JE; Thornton-Benko E; Emery J; McLoone JK; Cohn RJ; McLoone J; Thornton E, 2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26762

Stafford L; Sinclair M; Turner J; Newman L; Wakefield C; Krishnasamy M; Mann GB; Gilham L; Mason K; Rauch P; Cannell J; Schofield P, 2017, 'Study protocol for Enhancing Parenting In Cancer (EPIC): Development and evaluation of a brief psycho-educational intervention to support parents with cancer who have young children', Pilot and Feasibility Studies, 3, pp. 72, http://dx.doi.org/10.1186/s40814-017-0215-y

Young AL; Butow PN; Vetsch J; Quinn VF; Patenaude AF; Tucker KM; Wakefield CE, 2017, 'Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review', Journal of Genetic Counseling, 26, pp. 1179 - 1196, http://dx.doi.org/10.1007/s10897-017-0125-4

Signorelli C; Wakefield CE; McLoone JK; Fardell JE; Lawrence RA; Osborn M; Truscott J; Tapp H; Cohn RJ, 2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia Pacific Journal of Clinical Oncology, 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700

Lim Q; McGill BC; Quinn VF; Tucker KM; Mizrahi D; Patenaude AF; Warby M; Cohn RJ; Wakefield CE, 2017, 'Parents’ attitudes toward genetic testing of children for health conditions: A systematic review', Clinical Genetics, 92, pp. 569 - 578, http://dx.doi.org/10.1111/cge.12989

van Breeschoten J; De Abreu Lourenco R; Signorelli C; Haas M; Cohn RJ; Wakefield CE; Fardell JE, 2017, 'Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review', Critical Reviews in Oncology Hematology, 120, pp. 60 - 76, http://dx.doi.org/10.1016/j.critrevonc.2017.10.004

Healey E; Taylor N; Greening S; Wakefield CE; Warwick L; Williams R; Tucker K, 2017, 'Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families', Genetics in Medicine, 19, pp. 1323 - 1331, http://dx.doi.org/10.1038/gim.2017.52

McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001

Sajeev M; Cohen J; Wakefield CE; Fardell JE; Cohn RJ, 2017, 'Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study', Journal of Parenteral and Enteral Nutrition, 41, pp. 1336 - 1347, http://dx.doi.org/10.1177/0148607116661840

Cohen J; Wakefield CE; Tapsell LC; Walton K; Cohn RJ, 2017, 'Parent, patient and health professional perspectives regarding enteral nutrition in paediatric oncology', Nutrition and Dietetics, 74, pp. 476 - 487, http://dx.doi.org/10.1111/1747-0080.12336

Mizrahi D; Wakefield CE; Fardell JE; Quinn VF; Lim Q; Clifford BK; Simar D; Ness KK; Cohn RJ, 2017, 'Distance-delivered physical activity interventions for childhood cancer survivors: A systematic review and meta-analysis', Critical Reviews in Oncology Hematology, 118, pp. 27 - 41, http://dx.doi.org/10.1016/j.critrevonc.2017.08.008

Russo S; Warby M; Tucker KM; Wakefield CE; Cohn RJ, 2017, 'Importance of updating family cancer history in childhood cancer survivors', Familial Cancer, 16, pp. 605 - 610, http://dx.doi.org/10.1007/s10689-017-9988-7

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