By Professor Claire Elizabeth Wakefield

Journal articles

Docking KM; Hodges R; Campbell L; Chami S; Knijnik SR; Campbell E; Paquier P; Dalla-Pozza L; Wakefield CE; Waugh MC; Messina M; Morgan AT, 2025, 'Clinical Practice Guideline for the Management of Communication and Swallowing in Children Diagnosed With Childhood Brain Tumor or Leukemia', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31749

Ha L; Wakefield CE; Jacovou J; Johnston K; Drew D; Donoghoe MW; Mizrahi D; Lourenco RDA; Cohn RJ; Taylor N; Signorelli C; Roughley K; Joyner C; Wright A, 2025, '‘Making Moves’: Protocol for a hybrid effectiveness-implementation pre-post trial of a co-designed online physical activity program for childhood cancer survivors', Jsams Plus, 5, http://dx.doi.org/10.1016/j.jsampl.2025.100099

Schilstra CE; Wakefield CE; McLoone J; Wiener L; Donoghoe MW; Hoffman RI; Echodu M; Ortiz R; Ilbawi A; Cayrol J, 2025, 'Development of a World Health Organization international survey assessing the lived experience of people affected by cancer: outcomes from pilot testing, user feedback, and survey revision', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09372-2

McLoone JK; Wakefield CE; Glasson N; Wiener L; Ortiz R; Ilbawi A; Schilstra CE; Hoffman R; Cayrol J, 2025, 'The Lived Experience of Childhood Cancer Survivors and Their Parents: A Multi-National Study of Access to Survivorship Care and Information and Support Needs', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31593

Ha L; Signorelli C; Cohen J; Neville KA; Wakefield CE; Cohn RJ, 2025, 'Impact of a digital physical activity intervention on reducing sugar-sweetened beverage intake in young childhood cancer survivors: Epidemiology', British Journal of Cancer, 132, pp. 583 - 584, http://dx.doi.org/10.1038/s41416-025-02965-y

Finney J; Fargas V; Gonzalez T; Taylor N; Wakefield CE; Tucker K; Turbitt E; Williams R, 2025, 'Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context', Journal of Genetic Counseling, 34, http://dx.doi.org/10.1002/jgc4.1982

Parker C; Schilstra CE; McCleary K; Martin M; Trahair TN; Kotecha RS; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Marshall GM; Wakefield CE; Mateos MK; Fardell JE, 2025, 'Psychosocial Outcomes in Parents of Children with Acute Lymphoblastic Leukaemia in Australia and New Zealand Through and Beyond Treatment', Cancers, 17, http://dx.doi.org/10.3390/cancers17071238

Robertson EG; Hetherington K; Hunter JD; McGillycuddy M; Venkatesha V; Lau LMS; Khuong-Quang DA; Ziegler DS; Wakefield CE, 2025, 'Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer', JCO Precision Oncology, 9, pp. e2400840, http://dx.doi.org/10.1200/PO-24-00840

Elias J; McLoone JK; McKay S; Signorelli C; Cohn RJ; Wakefield CE; Mazariego C; Taylor N, 2025, 'Planning for Scale-Up and Sustainability: A Multi-site Process Evaluation Protocol for a Novel Intervention for Survivors of Childhood Brain Cancer', Global Implementation Research and Applications, 5, pp. 290 - 305, http://dx.doi.org/10.1007/s43477-025-00159-5

Hill RE; Fardell JE; Mercieca-Bebber R; Wakefield CE; Signorelli C; Webber K; Johnston KA; Cohn RJ, 2025, 'Survivorship care plan utilization in Australia and New Zealand: survivors’, parents’ and healthcare providers’ perspectives', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09238-7

Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2025, 'A scoping review of participant reported outcome measures assessed during live and simulated surgical procedures', American Journal of Surgery, 240, pp. 116131, http://dx.doi.org/10.1016/j.amjsurg.2024.116131

Zhang T; Ren Z; Wakefield CE; Hui BPH; Akechi T; Shi C; Du X; Chen W; Lai L; Zhao C; Li Y; Zhou Y, 2025, 'Are digital psychological interventions for psychological distress and quality of life in cancer patients effective? A systematic review and network meta-analysis', Clinical Psychology Review, 115, http://dx.doi.org/10.1016/j.cpr.2024.102520

Hunter JD; Hetherington K; Wakefield CE; Tucker KM; McGill BC; Grant A; Fuentes-Bolanos NA; Padhye B; Gleeson M; Bhatia K; Peate M, 2025, 'Delivering Trio Germline Whole Genome Sequencing to Patients Newly Diagnosed With Childhood Cancer: Healthcare Professionals' Perspectives of the PREDICT Study', Cancer Medicine, 14, http://dx.doi.org/10.1002/cam4.70680

Van Hoyweghen S; Claes KBM; de Putter R; Wakefield CE; Van Poucke M; Van Schoors M; Hellemans S; Verhofstadt L, 2025, 'Family-Level Impact of Germline Genetic Testing in Childhood Cancer: A Multi Family Member Interview Analysis', Cancers, 17, http://dx.doi.org/10.3390/cancers17030517

Soosay Raj TA; Harrison J; Wakefield CE; Daur B; Felmingham B; Casey M; McLoone JK; Sullivan M; Staffieri SE; Anga G, 2025, 'Building capacity to treat childhood cancer in Papua New Guinea: ‘It’s a multidisciplinary village’', Journal of Global Health, 15, http://dx.doi.org/10.7189/JOGH.15.03008

Signorelli C; Mcloone J; Wakefield C; Donoghoe M; Alchin JE; Johnston K; Baldwin R; Thornton-Benko E; Webber K; Foreman T; Neville K; Cohn R, 2025, 'Engage: A Survivorship Program to Improve Childhood Cancer Survivors' Self-Efficacy and Quality of Life', JCO Oncology Practice, http://dx.doi.org/10.1200/OP-24-00815

Sansom-Daly UM; Kirton C; Lim CYS; Wakefield CE; Hetherington K; McGill BC; Evans HE; Patterson P; Ellis SJ, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922

Long S; Schofield D; Kraindler J; Vink R; Ross K; Hart N; Evans H; Wilson A; Hyett J; Wakefield CE; Kelada L; Scott H; Lunke S; Wall M; Buckley MF; Fernihough G; McGillivray G; Roscioli T, 2025, 'The PreGen Research Program: Implementing Prenatal Genomic Testing in Australia—A Commentary', Australian and New Zealand Journal of Obstetrics and Gynaecology, http://dx.doi.org/10.1111/ajo.13936

Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, 27, pp. 1606 - 1617, http://dx.doi.org/10.1089/jpm.2024.0141

Foster E; Chen Z; Wakefield CE; Ademi Z; Hutton E; Steiner TJ; Zagami AS, 2024, 'Australian Headache Epidemiology Data (AHEAD): a pilot study to assess sampling and engagement methodology for a nationwide population-based survey', Journal of Headache and Pain, 25, http://dx.doi.org/10.1186/s10194-024-01773-8

Signorelli C; Kelada L; Wakefield CE; Alchin JE; Adam I; Hoffmann P, 2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', Pec Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251

Mazariego C; Daly R; McGill B; Kelada L; McKay S; Hetherington K; Ziegler DS; Wakefield CE; Taylor N, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147

Budden AK; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon stress, anxiety, and workload: a descriptive study of participant reported responses to fundamentals of laparoscopic surgery exercises', Surgical Endoscopy, 38, pp. 6518 - 6526, http://dx.doi.org/10.1007/s00464-024-11238-3

Kelada L; Jaaniste T; Cuganesan A; Chin WL; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, 22, pp. 1353 - 1359, http://dx.doi.org/10.1017/S1478951524001056

Jongenelis MI; Gill M; Lawrence N; Wakefield CE, 2024, 'Quitting intentions and behaviours among young Australian e-cigarette users', Addiction, 119, pp. 1608 - 1615, http://dx.doi.org/10.1111/add.16530

Gerstl B; Signorelli C; Wakefield CE; Deans R; Vaishnav T; Johnston K; Neville K; Cohn RJ; Anazodo A, 2024, 'Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer', Journal of Cancer Survivorship, 18, pp. 1201 - 1210, http://dx.doi.org/10.1007/s11764-023-01349-6

Gonzalez T; Tucker K; Wakefield CE; Geelan-Small P; Macmillan S; Taylor N; Williams R, 2024, 'Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study', Journal of Telemedicine and Telecare, 30, pp. 949 - 960, http://dx.doi.org/10.1177/1357633X221112556

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Ribeiro R; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 2091, http://dx.doi.org/10.1038/s41591-024-03065-9

Fredriksen T; Vatne TM; Haukeland YB; Czajkowski NO; Wakefield CE; Fjermestad KW, 2024, 'Evaluation of Siblings’ Perceived Relationship Outcomes with Their Parents in an Open Trial of the SIBS Intervention for Children with Chronic Disorders', Journal of Child and Family Studies, 33, pp. 2271 - 2285, http://dx.doi.org/10.1007/s10826-024-02824-z

Nguyen CQ; Kariyawasam DST; Ngai TSJ; Nguyen J; Alba-Concepcion K; Grattan SE; Palmer EE; Hetherington K; Wakefield CE; Dale RC; Woolfenden S; Mohammad S; Farrar MA, 2024, '‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14063

Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992

Robertson EG; Hetherington K; Daly R; Donoghoe MW; Handelsman N; Ziegler DS; Wakefield CE, 2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339

Daly R; Hetherington K; Wadling BR; Jacobs C; Karpelowsky J; Wakefield CE, 2024, 'It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7209

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B; Peek A, 2024, 'Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 605, http://dx.doi.org/10.1038/s41591-023-02753-2

Smyth R; Reid SM; Paton K; Guzys AT; Wakefield CE; Amor DJ, 2024, 'Causation in cerebral palsy: Parental beliefs and associated emotions', Developmental Medicine and Child Neurology, 66, pp. 258 - 266, http://dx.doi.org/10.1111/dmcn.15708

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 603, http://dx.doi.org/10.1038/s41591-023-02651-7

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Lee AE; McLoone JK; Touyz LM; Wakefield CE; Cohn RJ; Signorelli C, 2024, 'It just never ends: Childhood cancer survivors' perceived psychosocial impacts of recurrence and second cancer', Palliative and Supportive Care, 22, pp. 31 - 40, http://dx.doi.org/10.1017/S1478951522001328

Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon reported measures of stress and anxiety prior to and after elective gynecological surgery', Acta Obstetricia Et Gynecologica Scandinavica, 103, pp. 360 - 367, http://dx.doi.org/10.1111/aogs.14728

Cayrol J; Wakefield CE; Ilbawi A; Donoghoe M; Hoffman R; Echodu M; Schilstra C; Ortiz R; Wiener L; Gok C, 2024, 'The lived experience of people affected by cancer: A global cross-sectional survey protocol', Plos One, 19, pp. e0294492, http://dx.doi.org/10.1371/journal.pone.0294492

Mazariego CG; McKay S; Tyedmers E; Kelada L; McGill BC; Daly R; Wakefield CE; Ziegler DS; Taylor N; Mazariego-Jones C, 2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434

Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2024, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-024-01560-z

Boensvang NN; Weibel M; Wakefield CE; Bidstrup PE; Olsen M; Nissen KB; Spager V; Fridh MK; Larsen HB, 2024, 'Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation', Jmir Pediatrics and Parenting, 7, http://dx.doi.org/10.2196/53309

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2024, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935241238485

Van Hoyweghen S; BM Claes K; de Putter R; Wakefield C; Van Schoors M; Hellemans S; Verhofstadt L, 2024, 'The psychological impact of genetic testing in childhood cancer: A systematic review', Psycho Oncology, 33, http://dx.doi.org/10.1002/pon.6279

Hetherington K; Wakefield CE; McGill BC; Tucker KM; Donoghoe MW; Daly R; Hunter JD; Ballinger M; Fuentes-Bolanos NA; Ziegler DS, 2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133

Church AJ; Wakefield CE; Hetherington K; Shern JF, 2024, 'Promise and Perils of Precision Oncology for Patients With Pediatric and Young Adult Sarcomas.', Am Soc Clin Oncol Educ Book, 44, pp. e432794, http://dx.doi.org/10.1200/EDBK_432794

Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984

Nevin SM; McGill BC; Kelada L; Hilton G; Maack M; Elvidge KL; Farrar MA; Baynam G; Katz NT; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield CE, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3

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