Select Publications
Books
, 2010, Suicide risk assessment and intervention strategies: Current practices in Australian residential drug and alcohol rehabilitation services, National Drug and Alcohol Research Centre, University of New South Wales, Sydney, NSW 2052, Australia., Sydney, NSW, Australia, http://ndarc.med.unsw.edu.au/resource/suicide-risk-assessment-and-intervention-strategies-current-practices-australian
, 2008, The contribution of cannabis use to psychotic symptons among methamphetamine treatment entrants., National Drug and Alcohol Research Centre, Sydney
Book Chapters
, 2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1
, 2019, 'The Camino de Santiago and Wellbeing: an Interpretative Phenomenological Analysis of the Pilgrimage Experiences of Australian Women', in At the Interface Probing the Boundaries, pp. 65 - 76, http://dx.doi.org/10.1163/9789004381223_008
, 2014, 'The impact of rumination on positive autobiographical memories in depression.', in K. Kaniasty, K.A. Moore, S. Howard, & P. Buchwald (ed.), Stress and Anxiety: Applications to Social and Environmental Threats, Psychological Well-Being, Occupational Challenges, and Developmental Psychology., pp. 65 - 71
Journal articles
, 2025, 'Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership', BMJ Open, 15, http://dx.doi.org/10.1136/bmjopen-2025-100301
, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, http://dx.doi.org/10.3390/cancers17132123
, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175
, 2025, 'Dismantling barriers to research and clinical care for individuals with a vision impairment', Medical Journal of Australia, 222, pp. 324 - 326, http://dx.doi.org/10.5694/mja2.52627
, 2025, 'Codesign and evaluation of advanced therapeutic information resources for and with families of children with neurological conditions: A mixed methods cross-sectional study', Archives of Disease in Childhood, 110, pp. 308 - 315, http://dx.doi.org/10.1136/archdischild-2024-327914
, 2025, 'Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer', JCO Precision Oncology, 9, pp. e2400840, http://dx.doi.org/10.1200/PO-24-00840
, 2025, 'Psychological and emotional profiles of Australian uterine transplant potential recipients: A comparison with international trials', Acta Obstetricia Et Gynecologica Scandinavica, 104, pp. 528 - 539, http://dx.doi.org/10.1111/aogs.14974
, 2025, 'Delivering Trio Germline Whole Genome Sequencing to Patients Newly Diagnosed With Childhood Cancer: Healthcare Professionals' Perspectives of the PREDICT Study', Cancer Medicine, 14, http://dx.doi.org/10.1002/cam4.70680
, 2025, 'Factors that influence the uptake of precision-guided treatment recommendations in paediatric cancer: a systematic review', British Journal of Cancer, http://dx.doi.org/10.1038/s41416-025-03171-6
, 2025, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333251369689
, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922
, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
, 2024, 'Second Opinion Seeking in Paediatric Oncology: Motivations and Predictors', Psycho Oncology, 33, http://dx.doi.org/10.1002/pon.70011
, 2024, 'Abstract B066: Bridging patient reported outcomes and CTCAE to improve supportive care and trial design: The PROptimise initiative', Cancer Research, 84, pp. B066 - B066, http://dx.doi.org/10.1158/1538-7445.pediatric24-b066
, 2024, 'Parents’ and patients’ perspectives, experiences, and preferences for germline genetic or genomic testing of children with cancer: A systematic review', Genetics in Medicine, 26, http://dx.doi.org/10.1016/j.gim.2024.101197
, 2024, '‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14063
, 2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339
, 2024, 'It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7209
, 2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133
, 2024, 'Promise and Perils of Precision Oncology for Patients With Pediatric and Young Adult Sarcomas.', Am Soc Clin Oncol Educ Book, 44, pp. e432794, http://dx.doi.org/10.1200/EDBK_432794
, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914
, 2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917
, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1
, 2023, 'Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 13, http://dx.doi.org/10.3390/jpm13071033
, 2023, 'Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: The PREDICT study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-070082
, 2022, '‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics', Health Expectations, 25, pp. 3175 - 3191, http://dx.doi.org/10.1111/hex.13625
, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015
, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2
, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310
, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327
, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968
, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087
, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6
, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345
, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013
, 2020, 'Families’ experiences of a precision medicine trial for childhood cancer', Oncology Central
, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
, 2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 10, pp. 9, http://dx.doi.org/10.3390/jpm10010009
, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320
, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
, 2019, 'Brief report: Bereaved parents informing research design: The place of a pilot study', Death Studies, 43, pp. 62 - 69, http://dx.doi.org/10.1080/07481187.2018.1436616
, 2019, 'Introduction', At the Interface Probing the Boundaries, 109, pp. 1 - 7, http://dx.doi.org/10.1163/9789004381223_002