By Associate Professor Ursula Margaret Sansom-Daly

Journal articles

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Harrison R; Raman M; Walpola RL; Chauhan A; Sansom-Daly UM, 2021, 'Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers', BMC Health Services Research, 21, http://dx.doi.org/10.1186/s12913-021-06611-0

Sansom-Daly UM; Lobb EA; Evans HE; Breen LJ; Ugalde A; Best M; Zomerdijk N; Beasley EA; Taylor KL; Clayton J; Sharpe L; Bartula I; Olver I, 2021, 'To be mortal is human: Professional consensus around the need for more psychology in palliative care', BMJ Supportive and Palliative Care, 11, pp. 401 - 403, http://dx.doi.org/10.1136/bmjspcare-2021-002884

Sansom‐daly UM; Wakefield CE; Signorelli C; Donoghoe MW; Anazodo A; Sawyer SM; Osborn M; Viney R; Daniell N; Faasse K; Cohn RJ; Sansom-Daly U, 2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Davies JP; Mcgill BC; Sansom-Daly UM; Wakefield CE; Kelly DM, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122

Ugalde A; Winter N; Sansom-Daly UM; Rhee J; Jongebloed H; Bergin RJ; Livingston PM, 2021, 'Effective integration of caregivers and families as part of the care team for people with cancer', Australian Journal of General Practice, 50, pp. 527 - 531, http://dx.doi.org/10.31128/AJGP-03-21-5897

McLoone J; Wakefield CE; Sansom-Daly UM; Thornton-Benko E; Govender D; Gabriel M; Walwyn T; Signorelli C; Johnston K; Cohn RJ; Thornton E, 2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945

Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460

Clarke K; Patterson P; McDonald FEJ; Wakefield CE; Sansom-Daly U; Zebrack B, 2021, 'The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors', Child and Youth Care Forum, 50, pp. 229 - 246, http://dx.doi.org/10.1007/s10566-020-09571-4

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM; Gok C, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740

Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968

Sansom-Daly UM; Hetherington K; Hetherington K; McGill BC; McGill BC; Kelada L; Kelada L; McLoone J; McLoone J; Signorelli C; Signorelli C; Winkler L; Winkler L; Robertson EG; Robertson EG; Wakefield CE; Wakefield CE; Ellis SJ; Ellis SJ, 2021, 'Promise, pitfalls and progress of on-line cognitive behavioural therapy: Lessons learned from a paediatric oncology unit', QUADERNI DI PSICOTERAPIA COGNITIVA, pp. 85 - 100, http://dx.doi.org/10.3280/qpc47-2020oa11207

McLoone J; Wakefield CE; Taylor N; Johnston K; Sansom-Daly UM; Cohen J; O'Brien TA; Cohn RJ; Signorelli C, 2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715

Lorimer SB; Sansom-Daly UM; Stech EP; Newby JM, 2020, 'Predictors of health anxiety in cancer patients' loved ones: A controlled comparison', Psycho Oncology, 29, pp. 1874 - 1882, http://dx.doi.org/10.1002/pon.5517

Sansom-Daly UM; Bradford N, 2020, 'Grappling with the “human” problem hiding behind the technology: Telehealth during and beyond COVID-19', Psycho Oncology, 29, pp. 1404 - 1408, http://dx.doi.org/10.1002/pon.5462

Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6

Kelada L; Wakefield CE; Vetsch J; Schofield D; Sansom-Daly UM; Hetherington K; O'Brien T; Cohn RJ; Anazodo A; Viney R; Zeppel MJB, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345

Husson O; Poort H; Sansom-Daly UM; Netea-Maier R; Links T; Mols F, 2020, 'Psychological Distress and Illness Perceptions in Thyroid Cancer Survivors: Does Age Matter?', Journal of Adolescent and Young Adult Oncology, 9, pp. 375 - 383, http://dx.doi.org/10.1089/jayao.2019.0153

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2020, 'Experiences of Young People Living with Cancer in Nonmetropolitan Areas: A Review of the Literature', Journal of Adolescent and Young Adult Oncology, 9, pp. 133 - 144, http://dx.doi.org/10.1089/jayao.2019.0053

Evans HE; Sansom-Daly UM; Bryant R, 2020, 'Paediatric advance care plans: a cross-sectional survey of healthy young adults', BMJ Supportive and Palliative Care, 12, pp. E654 - E655, http://dx.doi.org/10.1136/bmjspcare-2019-001963

Radomski AD; Bagnell A; Curtis S; Hartling L; Newton AS, 2020, 'Examining the Usage, User Experience, and Perceived Impact of an Internet-Based Cognitive Behavioral Therapy Program for Adolescents With Anxiety: Randomized Controlled Trial.', JMIR Ment Health, 7, pp. e15795, http://dx.doi.org/10.2196/15795

Sansom-Daly UM, 2019, 'Cancer, Sex, Drugs and Death: A Guide for the Psychological Management of Young People with Cancer', JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 8, pp. 707 - 708, http://dx.doi.org/10.1089/jayao.2019.0066

Gessler D; Juraskova I; Sansom-Daly UM; Shepherd HL; Patterson P; Muscat DM, 2019, 'Clinician-patient-family decision-making and health literacy in adolescents and young adults with cancer and their families: A systematic review of qualitative studies', Psycho Oncology, 28, pp. 1408 - 1419, http://dx.doi.org/10.1002/pon.5110

Brierley MEE; Sansom-Daly UM; Baenziger J; McGill B; Wakefield CE, 2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13052

Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320

Kelada L; Wakefield CE; Carlson L; Hetherington K; McGill BC; McCarthy MC; Miles G; Cohn RJ; Sansom-Daly UM, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9

Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856

Ferraz de Arruda-Colli MN; Sansom-Daly U; Santos MAD; Wiener L, 2018, 'Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer', Clinical Practice in Pediatric Psychology, 6, pp. 341 - 354, http://dx.doi.org/10.1037/cpp0000254

Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938

Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157

Chalmers J; Sansom-Daly U; Patterson P; McCowage G; Anazodo A, 2018, 'Psychosocial Assessment Using Telehealth in Adolescents and Young Adults With Cancer: A Partially Randomized Patient Preference Pilot Study.', JMIR Research Protocols, Vol 7, http://dx.doi.org/10.2196/resprot.8886

Fardell JE; Wakefield CE; Patterson P; Lum A; Cohn RJ; Pini SA; Sansom-Daly UM, 2018, 'Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research', Journal of Adolescent and Young Adult Oncology, 7, pp. 143 - 147, http://dx.doi.org/10.1089/jayao.2017.0086

Vetsch J; Wakefield CE; McGill BC; Cohn RJ; Ellis SJ; Stefanic N; Sawyer SM; Zebrack B; Sansom-Daly UM, 2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525

Fardell JE; Patterson P; Wakefield CE; Signorelli C; Cohn R; Anazodo A; Zebrack B; Sansom-Daly U, 2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100

McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001

Sansom-Daly UM; Evans HE; Ellis SJ; McGill BC; Hetherington K; Wakefield CE, 2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535

May E; mcgill B; Anazodo A; wakefield C; Sansom-Daly U; Robertson E, 2017, 'Adolescent and Young Adult Cancer Survivors’ Experiences of the Healthcare System: A Qualitative Study.', Journal of Adolescent and Young Adult Oncology, 7, pp. 88 - 96, http://dx.doi.org/10.1089/jayao.2017.0015

Lin M; Sansom-Daly UM; Wakefield CE; McGill BC; Cohn RJ, 2017, 'Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors', Journal of Adolescent and Young Adult Oncology, 6, pp. 150 - 158, http://dx.doi.org/10.1089/jayao.2016.0024

Robertson EG; Sansom-Daly UM; Wakefield CE; Ellis SJ; Mcgill BC; Doolan EL; Cohn RJ, 2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061

Sansom-Daly UM; Bryant RA; Cohn RJ; Wakefield CE, 2016, 'Rumination and self-defining memories in the context of health concerns', Memory, 24, pp. 939 - 948, http://dx.doi.org/10.1080/09658211.2015.1059860

Sansom-Daly UM; McGill BC; Anazodo AC; Plaster M; Maguire F; O'Dwyer C; Ellis SJ; Robertson EG; Cohn RJ; Wakefield CE, 2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001

Wakefield CE; Sansom-Daly UM; McGill BC; Ellis SJ; Doolan EL; Robertson EG; Mathur S; Cohn RJ, 2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6

Sansom-Daly UM; Lin M; Robertson EG; Wakefield CE; McGill BC; Girgis A; Cohn RJ, 2016, 'Health Literacy in Adolescents and Young Adults: An Updated Review', Journal of Adolescent and Young Adult Oncology, 5, pp. 106 - 118, http://dx.doi.org/10.1089/jayao.2015.0059

Sansom-Daly UM; Wakefield CE; McGill BC; Wilson HL; Patterson P, 2016, 'Consensus among international ethical guidelines for the provision of videoconferencing-based mental health treatments', Jmir Mental Health, 3, http://dx.doi.org/10.2196/mental.5481

Sansom-Daly UM; Wakefield CE; McGill BC; Patterson P, 2015, 'Ethical and Clinical Challenges Delivering Group-based Cognitive-Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology', Australian Psychologist, 50, pp. 271 - 278, http://dx.doi.org/10.1111/ap.12112

Robertson EG; Wakefield CE; Marshall KH; Sansom-Daly UM, 2015, 'Strategies to improve adherence to treatment in adolescents and young adults with cancer: a systematic review', Clinical Oncology in Adolescents and Young Adults, 5, pp. 35 - 49, http://dx.doi.org/10.2147/coaya.s85988

Wakefield CE; Sansom-Daly UM; McGill BC; McCarthy M; Girgis A; Grootenhuis M; Barton B; Patterson P; Osborn M; Lowe C; Anazodo A; Miles G; Cohn RJ, 2015, 'Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: Study protocol for a randomised controlled trial', Trials, 16, pp. 153, http://dx.doi.org/10.1186/s13063-015-0681-6

Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2015, 'Through the looking glass: An exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, 23, pp. 34 - 40, http://dx.doi.org/10.1038/ejhg.2014.44

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