By Associate Professor Ursula Margaret Sansom-Daly

Journal articles

Kube P; Sansom-Daly UM; Weaver M; Darlington AS; Vokinger AK; Ciampa D; Long K; Wiener L, 2025, 'They had to watch: How parents perceive the suffering of siblings of children with cancer', Palliative and Supportive Care, 23, http://dx.doi.org/10.1017/S1478951525100825

Chitkara U; Chauhan A; Walsan R; Li M; Pervaz Iqbal M; El-Kabbout N; Faiz M; Rocha VM; Sansom-Daly UM; Harrison R, 2025, 'Advance Care Planning in Multicultural Communities: A Document Analysis of Resources to Support Healthcare Staff and Consumers in Australia', Health Expectations an International Journal of Public Participation in Health Care and Health Policy, 28, pp. e70460, http://dx.doi.org/10.1111/hex.70460

Jeon MS; He S; Shaw J; Koh E-S; Kelly B; Pinkham MB; Legge DM; Halkett GKB; Chan RJ; Ownsworth T; Sansom-Daly UM; Kastelan M; Dhillon HM, 2025, 'What constitutes optimal care coordination for primary brain tumors and how do we assess it in Australia and Aotearoa New Zealand? A Delphi consensus study', NEURO-ONCOLOGY PRACTICE, http://dx.doi.org/10.1093/nop/npaf082

Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, http://dx.doi.org/10.3390/cancers17132123

Chauhan A; Sansom-Daly UM; Manias E; Van Poucke M; Sarwar M; Tieu NT; El-Kabbout N; Walsan R; Chitkara U; Faiz M; Rocha VM; Harrison R, 2025, 'Implementing advance care planning with people from ethnic minority backgrounds with cancer: a qualitative study of factors affecting practice in Australia', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09707-z

Evans HE; Ralph M; Jaaniste T; Wakefield CE; Sansom-Daly UM, 2025, 'The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care', Children, 12, http://dx.doi.org/10.3390/children12070884

Hayes TRC; Sansom-Daly UM; Kelada L; Baenziger J; Hetherington K; Cohn RJ; Holland LR; Plaster M; Houweling R; Wakefield CE, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175

Jeon MS; Banks H; He S; Carlick T; Shaw JM; Kelly B; Koh ES; Halkett GKB; Ownsworth T; Chan RJ; Pinkham MB; Sansom-Daly UM; Dhillon HM; Agar M; Blackler T; Chan R; Haydon H; Legge D; Leonard R; Kelly B; Koh ES; Nowak A; Ownsworth T; Pike K; Rankin N; Pinkham M; Sansom-Daly U; Rhee J; Miller A; Milley K; Faris M; Campbell R; Jeon MS; Lion K; Banks H; Chen J; Fazon T; Lyne M; Virtue-Griffiths S; Buster J; McDougall E, 2025, 'Identifying components of care coordination for primary brain tumor: A scoping review', Neuro Oncology Practice, 12, pp. 357 - 375, http://dx.doi.org/10.1093/nop/npaf003

Kirchhofer SM; Orm S; Briggs NE; Fredriksen T; Zahl E; Prentice CM; Botta M; Kelada L; Sansom-Daly UM; Vatne TM; Fjermestad KW, 2025, 'Siblings in families of children with chronic disorders: A model of risk and protective factors', Journal of Pediatric Psychology, 50, pp. 488 - 499, http://dx.doi.org/10.1093/jpepsy/jsaf017

Campbell R; Shaw JM; Banks H; Carlick T; Faris MM; Jeon MS; Legge D; Foster C; Leonard R; Chan RJ; Agar MR; Miller A; Dhillon HM; McDougall E; Buster J; Vitangcol K; Virtue-Griffiths S; Lyne M; Fazon T; Chen J; Lion K; Milley K; Rhee J; Sansom-Daly U; Rankin N; Pike K; Ownsworth T; Nowak A; Koh ES; Kelly B; Haydon H; Halkett G; Blackler T, 2025, 'Co-designing a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with a brain tumour', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09471-0

Pike KE; Virtue-Griffiths SEB; Campbell R; Legge DM; Lion K; Moller CI; Ownsworth T; Pinkham MB; Saliba L; Sansom-Daly UM; Vuksanovic D; Shaw J; Dhillon HM, 2025, 'A randomized controlled trial of a telehealth group cognitive intervention (LaTCH-BRAINS) to improve cognition after primary brain tumor diagnosis', Neuro Oncology Advances, 7, http://dx.doi.org/10.1093/noajnl/vdaf182

Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2025, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333251369689

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller K; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, http://dx.doi.org/10.1002/pbc.32042

Kube P; Weaver M; Sansom-Daly U; Darlington AS; Wiener L, 2025, 'Suffering is a Useful Concept When We Understand the Sufferer', American Journal of Bioethics, 25, pp. 30 - 32, http://dx.doi.org/10.1080/15265161.2025.2525783

Sansom-Daly UM; Kirton C; Lim CYS; Wakefield CE; Hetherington K; McGill BC; Evans HE; Patterson P; Ellis SJ, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922

Nic Giolla Easpaig B; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Houweling RE; Edge R; Cummings J; Harrison R, 2025, 'What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01802-8

Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, 27, pp. 1606 - 1617, http://dx.doi.org/10.1089/jpm.2024.0141

Chauhan A; Chitkara U; Walsan R; Sansom-Daly UM; Manias E; Seah D; Dalli A; El-Kabbout N; Tieu T; Sarwar M; Faiz M; Huang N; Rocha VM; Pal A; Harrison R, 2024, 'Co-designing strategies to improve advance care planning among people from culturally and linguistically diverse backgrounds with cancer: iCanCarePlan study protocol', BMC Palliative Care, 23, http://dx.doi.org/10.1186/s12904-024-01453-z

Easpaig BNG; Newman B; Johnson J; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Harrison R, 2024, 'Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project', Health Expectations, 27, http://dx.doi.org/10.1111/hex.70061

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682, http://dx.doi.org/10.1089/jayao.2023.0186

Faris MM; Dhillon HM; Campbell R; Halkett GKB; Miller A; Chan RJ; Haydon HM; Sansom-Daly UM; Koh ES; Ownsworth T; Nowak AK; Kelly B; Leonard R; Pike KE; Legge DM; Pinkham MB; Agar MR; Shaw J, 2024, 'Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention', Jnci Cancer Spectrum, 8, http://dx.doi.org/10.1093/jncics/pkae034

Evans HE; Sansom-Daly UM; Bryant RA, 2024, 'Attachment as a mechanism influencing end-of-life communication: An analogue investigation', Plos One, 19, http://dx.doi.org/10.1371/journal.pone.0303652

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', Jmir Cancer, 10, http://dx.doi.org/10.2196/47944

Baenziger J; Roser K; Mader L; Ilic A; Sansom-Daly UM; von Bueren AO; Tinner EM; Michel G, 2024, 'Post-traumatic growth in parents of long-term childhood cancer survivors compared to the general population: A report from the Swiss childhood cancer survivor study—Parents', Psycho Oncology, 33, http://dx.doi.org/10.1002/pon.6246

Easpaig BNG; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Harrison R, 2024, 'Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer', Jmir Research Protocols, 13, http://dx.doi.org/10.2196/56403

McLoone JK; Sansom-Daly UM; Paglia A; Chia J; Larsen HB; Fern LA; Cohn RJ; Signorelli C, 2023, 'A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?', Adolescent Health Medicine and Therapeutics, 14, pp. 153 - 174, http://dx.doi.org/10.2147/ahmt.s428215

Goodwin B; Anderson L; Collins K; Sanjida S; Riba M; Singh GK; Campbell KM; Green H; Ishaque S; Kwok A; Opozda MJ; Pearn A; Shaw J; Sansom-Daly UM; Tsirgiotis JM; Janda M; Grech L, 2023, 'Anticipatory anxiety and participation in cancer screening. A systematic review', Psycho Oncology, 32, pp. 1773 - 1786, http://dx.doi.org/10.1002/pon.6238

Patterson P; Jacobsen RL; McDonald FEJ; Pflugeisen CM; Bibby K; Macpherson CF; Thompson K; Murnane A; Anazodo A; Sansom-Daly UM; Osborn MP; Hayward A; Kok C; Johnson RH, 2023, 'Beyond Medical Care: How Different National Models of Care Impact the Experience of Adolescent and Young Adult Cancer Patients', Journal of Adolescent and Young Adult Oncology, 12, pp. 859 - 867, http://dx.doi.org/10.1089/jayao.2022.0182

Sansom-Daly UM; Mack JW, 2023, 'Who gets to die at home? Race and disease-related cause of death impacts young adults’ place of death', Evidence Based Nursing, 27, pp. 79, http://dx.doi.org/10.1136/ebnurs-2023-103809

Sansom-Daly UM, 2023, 'Specialty Palliative Care for Adolescents and Young Adults with Cancer - Developmental Considerations and an Agenda for Future Research', JAMA Network Open, 6, http://dx.doi.org/10.1001/jamanetworkopen.2023.38681

Evans HE; Jessop S; Bedoya SZ; Lyon ME; Wiener L; Sansom-Daly UM, 2023, 'Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool', Current Problems in Cancer, 47, http://dx.doi.org/10.1016/j.currproblcancer.2023.101010

Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Bu S; Smith A; Janssen A; Donnelly C; Dadich A; Mackenzie LJ; Smith AL; Young AL; Wu VS; Smith SJ; Sansom-Daly UM, 2022, 'Optimising implementation of telehealth in oncology: A systematic review examining barriers and enablers using the RE-AIM planning and evaluation framework', Critical Reviews in Oncology Hematology, 180, http://dx.doi.org/10.1016/j.critrevonc.2022.103869

Kapurubandara SC; Lowes B; Sansom-Daly UM; Deans R; Abbott JA, 2022, 'A systematic review of diagnostic tests to detect pelvic floor myofascial pain', International Urogynecology Journal, 33, pp. 2379 - 2389, http://dx.doi.org/10.1007/s00192-022-05258-7

Sansom-Daly UM; McLoone JK; Touyz L; Signorelli C, 2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335

Trang J; Herbert A; Sansom-Daly UM, 2022, 'How can advance care planning tools help young people's voices be heard?', Journal of Paediatrics and Child Health, 58, pp. 1317 - 1322, http://dx.doi.org/10.1111/jpc.16095

Ownsworth T; Lion K; Sansom-Daly UM; Pike K; Koh ES; Halkett GKB; Pinkham MB; Chan RJ; Dhillon HM, 2022, 'Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families', Psycho Oncology, 31, pp. 1313 - 1321, http://dx.doi.org/10.1002/pon.5929

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', Plos One, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Patterson P; McDonald FEJ; Allison KR; Bibby H; Osborn M; Matthews K; Sansom-Daly UM; Thompson K; Plaster M; Anazodo A, 2022, 'The Clinical Utility of the Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST): Perspectives of AYA Cancer Patients and Healthcare Professionals', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.872830

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798

Bulsara SM; Sansom-Daly UM; Begley K; Forsythe L; Livermore N; Riashi M, 2022, 'Navigating the scientist-practitioner continuum: strategies to enhance Australian psychologists’ capacity to be research leaders', Australian Psychologist, 57, pp. 1 - 7, http://dx.doi.org/10.1080/00050067.2021.1981743

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2022, 'The Experiences of Young People Living With Cancer in Regional and Remote Australia: A Qualitative Study', Australian Social Work, 75, pp. 205 - 218, http://dx.doi.org/10.1080/0312407X.2021.1977355

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Harrison R; Raman M; Walpola RL; Chauhan A; Sansom-Daly UM, 2021, 'Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers', BMC Health Services Research, 21, http://dx.doi.org/10.1186/s12913-021-06611-0

Sansom-Daly UM; Lobb EA; Evans HE; Breen LJ; Ugalde A; Best M; Zomerdijk N; Beasley EA; Taylor KL; Clayton J; Sharpe L; Bartula I; Olver I, 2021, 'To be mortal is human: Professional consensus around the need for more psychology in palliative care', BMJ Supportive and Palliative Care, 11, pp. 401 - 403, http://dx.doi.org/10.1136/bmjspcare-2021-002884

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