By Professor Jackie Leach Scully

Journal articles

Bruscato U, 2011, 'Introduction', ARQUITETURA REVISTA, 7, pp. 1 - 1, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000297931000001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Scully JL, 2010, 'Hidden labor: Disabled/Nondisabled encounters, agency, and autonomy', International Journal of Feminist Approaches to Bioethics, 3, pp. 25 - 42, http://dx.doi.org/10.3138/ijfab.3.2.25

Scully JL, 2009, 'Virtuous Friends: Morality and Quaker Identity', Quaker Studies, 14, pp. 108 - 122, http://dx.doi.org/10.3828/quaker.14.1.108

Scully JL, 2008, 'DNA: Promise and Peril', Social History of Medicine, 21, pp. 593 - 595, http://dx.doi.org/10.1093/shm/hkn088

Scully JL, 2008, 'Disability and genetics in the era of genomic medicine', Nature Reviews Genetics, 9, pp. 797 - 802, http://dx.doi.org/10.1038/nrg2453

Porz R; Bürkli P; Barazzetti G; Scully JL; Rehmann-Sutter C, 2008, 'A challenged choice: Donating spare embryos to stem cell research in Switzerland', Swiss Medical Weekly, 138, pp. 551 - 556

Haimes E; Porz R; Scully J; Rehmann-Sutter C, 2008, '"So, what is an embryo?" A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland', New Genetics and Society, 27, pp. 113 - 126, http://dx.doi.org/10.1080/14636770802077041

Mackenzie C; Scully JL, 2007, 'Moral imagination, disability and embodiment', Journal of Applied Philosophy, 24, pp. 335 - 351, http://dx.doi.org/10.1111/j.1468-5930.2007.00388.x

Scully JL, 2007, 'The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease', Social History of Medicine, 20, pp. 402 - 403, http://dx.doi.org/10.1093/shm/hkm050

Scully JL; Porz R; Rehmann-Sutter C, 2007, ''You don't make genetic test decisions from one day to the next' - Using time to preserve moral space', Bioethics, 21, pp. 208 - 217, http://dx.doi.org/10.1111/j.1467-8519.2007.00546.x

Scully JL, 2007, 'Moral understandings: A feminist study in ethics', BioSocieties, 2, pp. 277 - 278, http://dx.doi.org/10.1017/s1745855207225542

Banks S; Scully JL; Shakespeare T, 2006, 'Ordinary ethics: Lay people's deliberations on social sex selection', New Genetics and Society, 25, pp. 289 - 303, http://dx.doi.org/10.1080/14636770601032890

Scully JL; Shakespeare T; Banks S, 2006, 'Gift not commodity? Lay people deliberating social sex selection', Sociology of Health and Illness, 28, pp. 749 - 767, http://dx.doi.org/10.1111/j.1467-9566.2006.00540.x

Scully JL; Rehmann-Sutter C, 2006, 'Creating Donors: The 2005 Swiss Law on Donation of ‘Spare’ Embryos to hESC Research', Journal of Bioethical Inquiry, 3, pp. 81 - 93, http://dx.doi.org/10.1007/s11673-006-9006-5

Scully JL; Banks S; Shakespeare TW, 2006, 'Chance, choice and control: Lay debate on prenatal social sex selection', Social Science and Medicine, 63, pp. 21 - 31, http://dx.doi.org/10.1016/j.socscimed.2005.12.013

, 2004, 'Research Ethics', JAMA, 292, pp. 3032 - 3032, http://dx.doi.org/10.1001/jama.292.24.3036-b

Scully JL, 2004, 'What is a disease?', EMBO Reports, 5, pp. 650 - 653, http://dx.doi.org/10.1038/sj.embor.7400195

Scully JL; Rippberger C; Rehmann-Sutter C, 2004, 'Non-professionals' evaluations of gene therapy ethics', Social Science and Medicine, 58, pp. 1415 - 1425, http://dx.doi.org/10.1016/S0277-9536(03)00336-8

Scully JL, 2003, 'Drawing Lines, Crossing Lines: Ethics and the Challenge of Disabled Embodiment', Feminist Theology, 11, pp. 265 - 280, http://dx.doi.org/10.1177/096673500301100302

, 2002, 'Jackie Leach Scully', The Lancet, 360, pp. 958 - 958, http://dx.doi.org/10.1016/s0140-6736(02)11037-3

Scully JL, 2001, 'Drawing a line: Situating moral boundaries in genetic medicine', Bioethics, 15, pp. 189 - 204, http://dx.doi.org/10.1111/1467-8519.00231

Scully JL; Rehmann-Sutter C, 2001, 'When norms normalize: The case of genetic "enhancement"', Human Gene Therapy, 12, pp. 87 - 95, http://dx.doi.org/10.1089/104303401451004

Scully JL, 1998, 'Women, theology and the human genome project', Feminist Theology, 6, pp. 59 - 73, http://dx.doi.org/10.1177/096673509800001705

Scully J, 1998, 'When Embodiment Isn't Good', Theology and Sexuality, 1998, pp. 10 - 28, http://dx.doi.org/10.1177/135583589800500902

Scully JL; Otten U, 1995, 'NGF: not just for neurons.', Cell Biology International, 19, pp. 459 - 470, http://dx.doi.org/10.1006/cbir.1995.1089

Scully JL; Otten U, 1995, 'Glucocorticoids, neurotrophins and neurodegeneration', Journal of Steroid Biochemistry and Molecular Biology, 52, pp. 391 - 401, http://dx.doi.org/10.1016/0960-0760(94)00190-W

Leach Scully J; Otten U, 1995, 'Neurotrophin expression modulated by glucocorticoids and oestrogen in immortalized hippocampal neurons', Molecular Brain Research, 31, pp. 158 - 164, http://dx.doi.org/10.1016/0169-328X(95)00047-V

Scully JL; Otten U, 1993, 'Glucocorticoid modulation of neurotrophin expression in immortalized mouse hippocampal neurons', Neuroscience Letters, 155, pp. 11 - 14, http://dx.doi.org/10.1016/0304-3940(93)90662-5

Bracci-Laudiero L; Aloe L; Levi-Montalcini R; Galeazzi M; Schilter D; Scully JL; Otten U, 1993, 'Increased levels of NGF in sera of systemic lupus erythematosus patients', Neuroreport, 4, pp. 563 - 565, http://dx.doi.org/10.1097/00001756-199305000-00025

Scully JL, 1993, 'Book Review : MIDGLEY, Mary, Science as Salvation (London: Routledge, 1992), pp. 239. £20.00. ISBN 0-415-0627103', Feminist Theology, 2, pp. 124 - 126, http://dx.doi.org/10.1177/096673509300000414

Scully JL; Edwards PAW, 1991, 'Transformation of a mammary epithelial cell line by the v‐raf and v‐mos oncogenes', International Journal of Cancer, 48, pp. 128 - 135, http://dx.doi.org/10.1002/ijc.2910480123

Conference Papers

Strnadova I; Loblinzk J; Scully JL; Tso M; Classen S; Dunn M; Boyle J; Palmer E, 2022, 'GeneEQUAL: Inclusive research to gain insights into the knowledge, perspectives, and experiences of people with intellectual disability about genomic healthcare', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 42 - 42, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022

Freeman L; Delatycki M; Scully JL; Kirk E, 2022, 'Reproductive genetic carrier screening for deafness: views of those with a lived experience', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 329 - 329, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022

Elmhamudi A; Abubakar A; Ugail H; Thomson B; Wilson C; Turner M; Manas D; Tingle S; Colenutt S; Sen G; Hunter J; Sun M; Scully J, 2022, 'Deep Learning Assisted Kidney Organ Image Analysis for Assessing the Viability of Transplantation', in International Conference on Software Knowledge Information Industrial Management and Applications Skima, pp. 204 - 209, http://dx.doi.org/10.1109/SKIMA57145.2022.10029406

Mouyal AV; Gurtin Z; Scully JL; Harper J, 2020, 'The infertility and fertility treatment experiences of Orthodox Jewish women in London', in HUMAN REPRODUCTION, OXFORD UNIV PRESS, ELECTR NETWORK, pp. I351 - I351, presented at 36th Virtual Annual Meeting of the European-Society-of-Human-Reproduction-and-Embryology (ESHRE), ELECTR NETWORK, 05 July 2020 - 08 July 2020, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000552121501339&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Abstracts

Freeman L; Kirk E; Delatycki M; Scully JL, 2023, 'Should genes for non syndromic hearing loss be included in population wide reproductive genetic carrier screening: views of those with lived experience of deafness', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, SCOTLAND, Glasgow, Vol. 32, pp. 360 - 360, presented at 56th Annual Conference of the European-Society-of-Human-Genetics (ESHG), SCOTLAND, Glasgow, 10 June 2023 - 13 June 2023

Reports

Kuai W; Witzenberger K; Manwaring K; Brown I; Scully JL; Kearnes M, 2024, Modifiable Futures: A Right to Repair for Medical Devices and Assistive Technologies, http://dx.doi.org/10.2139/ssrn.5035345, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=5035345

Bennett Moses L; Chappell L; Churches G; Zalnieriute M; Byrnes A; Scully JL; Kemp K; Greenleaf G, 2020, Submission to Federal Attorney General, Privacy Amendment (Public Health Contact Information) Bill 2020, https://www.allenshub.unsw.edu.au/sites/default/files/inline-files/UNSW%20Submission%20to%20AG%20Porter%20re%20COVIDSafe.pdf

Bennett Moses L; Churches G; Zalnieriute M; Byrnes A; Scully J; Kemp K; Greenleaf G, 2020, Submission to Senate Select Committee on COVID-19 re Privacy Amendment (Public Health Contact Information) Bill 2020, https://unsw.sharepoint.com/:b:/s/LawResearchSupport/ETsj6l0D8oBKhaCitN3nhssBB1QHxQsaXLMp9_9rXmF9vQ?e=46zOJ3

Bennett Moses L; Churches G; Zalnieriute M; Byrnes A; Scully J; Kemp K; Greenleaf G, 2020, COVIDSafe App - Submission to the Parliamentary Joint Committee on Human Rights, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3595109

Media

van Toorn G; Soldatic K; Scully JL, 2022, NDIS plans rely on algorithms to judge need – the upcoming review should change that, https://theconversation.com/ndis-plans-rely-on-algorithms-to-judge-need-the-upcoming-review-should-change-that-193106

Preprints

Dunn M; Strnadová I; Scully JL; Hansen J; Palmer EE, 2023, Exploring the Barriers and Enablers for the Equitable and Accessible Informed Healthcare Consent Process for People with Intellectual Disability: A Systematic Literature Review, http://dx.doi.org/10.1101/2023.03.06.23286791

Palmer E; Danker J; Strnadová I; Loblinzk J; Jackaman K-M; Scully JL; Sierra Classen Sierra Classen1 ; Dunn M; Sarfaraz S; Tso M; Boyle J; Fitzgerald V, 2022, “I am not a number!” Opinions and preferences of people with intellectual disability about genomic healthcare., http://dx.doi.org/10.21203/rs.3.rs-2150970/v1

Freeman L; Kirk E; Scully JL; Delatycki M, 2022, Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening, http://dx.doi.org/10.21203/rs.3.rs-1726721/v1

Bennett Moses L; Churches G; Zalnieriute M; Byrnes AC; Scully JL; Kemp K; Greenleaf G, COVIDSafe App - Submission to the Parliamentary Joint Committee on Human Rights, http://dx.doi.org/10.2139/ssrn.3595109

Kuai W; Witzenberger K; Manwaring K; Brown I; Scully JL; Kearnes M, Modifiable Futures: A Right to Repair for Medical Devices and Assistive Technologies, http://dx.doi.org/10.2139/ssrn.5035345

Bennett Moses L; Land LPW; Zalnieriute M; Zhao S; Nicholson K; de Sousa T; Sisson S; Tani M; Zlatanova S; Scully JL; Brown G; Krebs S, Submission: Australian Data Strategy Discussion Paper - Appendix 3 (Initial Consultation questions), http://dx.doi.org/10.2139/ssrn.4066124

Other

Dodds S; Ells C; Garry A; Holmes HB; Purdy L; Rawlinson MC; Scully JL; Tong R, 2015, In tribute to Anne Donchin (1930–2014), University of Toronto Press

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