By Professor Claire Elizabeth Wakefield

Journal articles

Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022

Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285

Chittem M; Kelada L; Muppavaram N; Lingappa L; Wakefield CE, 2022, 'Unmet and under-met needs among Indian parents of children with neurological disorders', Journal of Pediatric Nursing, 63, pp. e1 - e9, http://dx.doi.org/10.1016/j.pedn.2021.11.015

Kelada L; Wakefield C; Vidic N; Armstrong DS; Bennetts B; Boggs K; Christodoulou J; Harrison J; Ho G; Kapur N; Lindsey-Temple S; McDonald T; Mowat D; Schultz A; Selvadurai H; Tai A; Jaffe A, 2022, 'Genomic testing for children with interstitial and diffuse lung disease (chILD): Parent satisfaction, understanding and health-related quality of life', BMJ Open Respiratory Research, 9, http://dx.doi.org/10.1136/bmjresp-2021-001139

Page A; Broom A; Kenny K; Lwin Z; Wakefield CE; Itchins M; Khasraw M, 2022, 'Experiencing the SARS-CoV-2 Pandemic Whilst Living With Cancer', Qualitative Health Research, 32, pp. 426 - 439, http://dx.doi.org/10.1177/10497323211057082

Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653

Callander EJ; Bull C; Lain S; Wakefield CE; Lingam R; Marshall GM; Wake M; Nassar N, 2022, 'Inequality in early childhood chronic health conditions requiring hospitalisation: A data linkage study of health service utilisation and costs', Paediatric and Perinatal Epidemiology, 36, pp. 156 - 166, http://dx.doi.org/10.1111/ppe.12818

Fleming CAK; Murphy-Alford AJ; Cohen J; Fleming MR; Wakefield CE; Naumann F, 2022, 'Poor diet quality and adverse eating behaviors in young survivors of childhood cancer', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.29408

Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971

Bryan G; Kelly P; Chesters H; Franklin J; Griffiths H; Langton L; Langton L; Wakefield CE; Gibson F, 2021, 'Access to and experience of education for children and adolescents with cancer: a scoping review protocol', Systematic Reviews, 10, pp. 167, http://dx.doi.org/10.1186/s13643-021-01723-4

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

Kenny K; Broom A; Page A; Prainsack B; Wakefield CE; Itchins M; Lwin Z; Khasraw M, 2021, 'A sociology of precision-in-practice: The affective and temporal complexities of everyday clinical care', Sociology of Health and Illness, 43, pp. 2178 - 2195, http://dx.doi.org/10.1111/1467-9566.13389

Kelada L; Wakefield CE; De Graves S; Treadgold C; Dumlao G; Schaffer M; O'Brien T, 2021, 'Evaluation of an in-hospital recreation room for hospitalised children and their families', Journal of Pediatric Nursing, 61, pp. 191 - 198, http://dx.doi.org/10.1016/j.pedn.2021.05.017

Sansom‐daly UM; Wakefield CE; Signorelli C; Donoghoe MW; Anazodo A; Sawyer SM; Osborn M; Viney R; Daniell N; Faasse K; Cohn RJ; Sansom-Daly U, 2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Davies JP; Mcgill BC; Sansom-Daly UM; Wakefield CE; Kelly DM, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122

Sajeev MF; Kelada L; Yahya Nur AB; Wakefield CE; Wewege MA; Karpelowsky J; Akimana B; Darlington AS; Signorelli C, 2021, 'Interactive video games to reduce paediatric procedural pain and anxiety: a systematic review and meta-analysis', British Journal of Anaesthesia, 127, pp. 608 - 619, http://dx.doi.org/10.1016/j.bja.2021.06.039

Ha L; Mizrahi D; Cohn RJ; Simar D; Wakefield CE; Signorelli C, 2021, 'Accuracy of perceived physical activity and fitness levels among childhood cancer survivors', Pediatric Blood and Cancer, 68, pp. e29134, http://dx.doi.org/10.1002/pbc.29134

Edge R; Meyers J; Tiernan G; Li Z; Schiavuzzi A; Chan P; Vassallo A; Morrow A; Mazariego C; Wakefield CE; Canfell K; Taylor N; Mazariego-Jones C, 2021, 'Cancer care disruption and reorganisation during the COVID-19 pandemic in Australia: A patient, carer and healthcare worker perspective', Plos One, 16, pp. e0257420, http://dx.doi.org/10.1371/journal.pone.0257420

Gerstl B; Signorelli C; Wakefield CE; D'Souza C; Deans R; Vaishnav T; Johnston K; Neville KA; Cohn RJ; Anazodo A, 2021, 'Feasibility, acceptability and appropriateness of a reproductive patient reported outcome measure for cancer survivors', Plos One, 16, pp. e0256497, http://dx.doi.org/10.1371/journal.pone.0256497

McLoone J; Wakefield CE; Sansom-Daly UM; Thornton-Benko E; Govender D; Gabriel M; Walwyn T; Signorelli C; Johnston K; Cohn RJ; Thornton E, 2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945

Bell L; Anderson K; Girgis A; Aoun S; Cunningham J; Wakefield CE; Shahid S; Smith AB; Diaz A; Lindsay D; Masa A; Garvey G; Smith B, 2021, '“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer', International Journal of Environmental Research and Public Health, 18, pp. 7281, http://dx.doi.org/10.3390/ijerph18147281

Stafford L; Sinclair M; Rauch P; Turner J; Mann GB; Newman L; Wakefield CE; Gilham L; Mason K; Cannell J; Little R; Schofield P, 2021, 'Feasibility of Enhancing Parenting in Cancer, a psychoeducational intervention for communicating with children about parental cancer', Psycho Oncology, 30, pp. 1172 - 1177, http://dx.doi.org/10.1002/pon.5655

Marchak JG; Devine KA; Hudson MM; Jacobson LA; Michel G; Peterson SR; Schulte F; Wakefield CE; Sands SA, 2021, 'Systematic Review of Educational Supports of Pediatric Cancer Survivors: Current Approaches and Future Directions', Journal of Clinical Oncology, 39, pp. 1813 - 1823, http://dx.doi.org/10.1200/JCO.20.02471

Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460

Anazodo AC; Choi S; Signorelli C; Ellis S; Johnston K; Wakefield CE; Deans R; Neville KA; Cohn RJ, 2021, 'Reproductive Care of Childhood and Adolescent Cancer Survivors: A 12-Year Evaluation', Journal of Adolescent and Young Adult Oncology, 10, pp. 131 - 141, http://dx.doi.org/10.1089/jayao.2020.0157

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606

Clarke K; Patterson P; McDonald FEJ; Wakefield CE; Sansom-Daly U; Zebrack B, 2021, 'The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors', Child and Youth Care Forum, 50, pp. 229 - 246, http://dx.doi.org/10.1007/s10566-020-09571-4

Kariyawasam DST; D'Silva AM; Vetsch J; Wakefield CE; Wiley V; Farrar MA, 2021, '“We needed this”: perspectives of parents and healthcare professionals involved in a pilot newborn screening program for spinal muscular atrophy', Eclinicalmedicine, 33, pp. 100742, http://dx.doi.org/10.1016/j.eclinm.2021.100742

Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244

Burns MA; Aralova M; Ellis SJ; Aslanyan KS; Egorkina T; Wakefield CE, 2021, 'Pediatric psycho-oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards', Psycho-Oncology, 30, pp. 185 - 193, http://dx.doi.org/10.1002/pon.5547

Ha L; Mizrahi D; Wakefield CE; Cohn RJ; Simar D; Signorelli C, 2021, 'The Use of Activity Trackers in Interventions for Childhood Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 10, pp. 1 - 14, http://dx.doi.org/10.1089/jayao.2020.0099

Fawcett LK; Wakefield CE; Sivam S; Middleton PG; Wark P; Widger J; Jaffe A; Waters SA, 2021, 'Avatar acceptability: Views from the australian cystic fibrosis community on the use of personalised organoid technology to guide treatment decisions', Erj Open Research, 7, pp. 1 - 10, http://dx.doi.org/10.1183/23120541.00448-2020

Heathcote LC; Loecher N; Spunt SL; Simon P; Tutelman PR; Wakefield CE; Ach E; Schapira L, 2021, 'Do qualitative interviews cause distress in adolescents and young adults asked to discuss fears of cancer recurrence?', Psycho Oncology, 30, pp. 123 - 126, http://dx.doi.org/10.1002/pon.5544

Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968

Robertson EG; Wakefield CE; Tsoli M; Kellie SJ; Alvaro F; Gifford AJ; Weber MA; Rodriguez M; Kirby M; Ziegler DS, 2021, 'Parents' experiences of postmortem tumor donation for high-grade gliomas: Benefits and suggested improvements', Neuro Oncology Advances, 3, pp. vdab087, http://dx.doi.org/10.1093/noajnl/vdab087

Kelada L; Wakefield CE; Muppavaram N; Lingappa L; Chittem M, 2021, 'Psychological outcomes, coping and illness perceptions among parents of children with neurological disorders', Psychology and Health, 36, pp. 1480 - 1496, http://dx.doi.org/10.1080/08870446.2020.1859113

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087

Nevin SM; McLoone J; Wakefield CE; Kennedy SE; McCarthy HJ, 2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, 11, pp. 117 - 125, http://dx.doi.org/10.1055/s-0040-1721439

Taylor N; Healey E; Morrow A; Greening S; Wakefield CE; Warwick L; Williams R; Tucker KM, 2020, 'Aligning intuition and theory: enhancing the replicability of behaviour change interventions in cancer genetics', Implementation Science Communications, 1, pp. 90, http://dx.doi.org/10.1186/s43058-020-00054-0

Michel G; Brinkman TM; Wakefield CE; Grootenhuis M, 2020, 'Psychological Outcomes, Health-Related Quality of Life, and Neurocognitive Functioning in Survivors of Childhood Cancer and Their Parents', Pediatric Clinics of North America, 67, pp. 1103 - 1134, http://dx.doi.org/10.1016/j.pcl.2020.07.005

McLoone J; Wakefield CE; Taylor N; Johnston K; Sansom-Daly UM; Cohen J; O'Brien TA; Cohn RJ; Signorelli C, 2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715

Buchhorn-White J; Robertson EG; Wakefield CE; Cohen J, 2020, 'A decision aid for nutrition support is acceptable in the pediatric hospital setting', Journal of Pediatric Nursing, 55, pp. 165 - 173, http://dx.doi.org/10.1016/j.pedn.2020.08.013

Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE; Gok C, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382

Touyz LM; Cohen J; Garnett SP; Grech AM; Gohil P; Cohn RJ; Wakefield CE, 2020, 'Acceptability and feasibility of a parent-targeted dietary intervention in young survivors of childhood cancer: “Reboot”', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28533

Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932

Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; McLoone JK; Brierley MEE; Schaffer M; Thornton-Benko E; Girgis A; Hamish Wallace W; Cohn RJ; Thornton E, 2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', Jnccn Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552

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