By Ms Fleur Annette Le Marne

Journal articles

Cardamone M; Banuelos R; Beavis E; Marne FL; Rowe N; Gao Y; Menzies J; Farrar MA, 2025, 'Parental perspectives on dietary therapy for children with intractable epilepsy: factors influencing efficacy, tolerability and compliance', Journal of Neurology & Stroke, 15, pp. 22 - 27, http://dx.doi.org/10.15406/jnsk.2025.15.00616

Nevin SM; Le Marne FA; Beavis E; Macintosh R; Palmer EE; Sachdev R; Nunn K; Bye A; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Ging J; Doyle K; Bhattacharya K; Stark K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V, 2024, 'Psychosocial experiences of clinicians providing care for children with severe neurological impairment', Developmental Medicine and Child Neurology, 66, pp. 1622 - 1631, http://dx.doi.org/10.1111/dmcn.15987

Innes EA; Marne FAL; Macintosh R; Nevin SM; Briggs NE; Vivekanandarajah S; Webster RI; Sachdev RK; Bye AME, 2024, 'Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset', Seizure, 115, pp. 1 - 13, http://dx.doi.org/10.1016/j.seizure.2023.12.013

Robertson EG; Kelada L; Best S; Goranitis I; Pierce K; Roberts NJ; Sachdev R; Le Marne F; Macintosh R; Beavis E; Bye A; Palmer EE, 2024, 'Quality of life in caregivers of a child with a developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 66, pp. 206 - 215, http://dx.doi.org/10.1111/dmcn.15695

Robertson EG; Roberts NJ; Le Marne F; Beavis E; Macintosh R; Kelada L; Best S; Goranitis I; Pierce K; Gill D; Sachdev R; Bye A; Palmer EE, 2023, '“Somewhere to turn to with my questions”: A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy', European Journal of Paediatric Neurology, 47, pp. 94 - 104, http://dx.doi.org/10.1016/j.ejpn.2023.09.010

Le Marne FA; Briggs N; Frith K; Kariyawasam D; McCarthy HJ; Nunn K; Rao A; Sachdev R; Sarkozy V; Teng A; Trethewie S; Williams GD; Bye AME, 2023, 'Understanding the ongoing learning needs of Australian paediatricians: Evaluation of a pilot paediatric video teaching programme', Journal of Paediatrics and Child Health, 59, pp. 307 - 318, http://dx.doi.org/10.1111/jpc.16291

Le Marne FA; Stephens LM; Kranzusch K; Gunaratne PC; Ryan PJ; Archer ND; Beggs S; Balasooriya C; Bye AME, 2023, 'Understanding the ongoing learning needs of Australian metropolitan, rural and remote paediatricians: Evaluation of a neurology outreach programme', Journal of Paediatrics and Child Health, 59, pp. 134 - 143, http://dx.doi.org/10.1111/jpc.16261

Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', Pec Innovation, 1, http://dx.doi.org/10.1016/j.pecinn.2021.100014

Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249

Nevin SM; Beavis E; Macintosh R; Palmer EE; Sachdev R; Le Marne FA; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty', Journal of Paediatrics and Child Health, 58, pp. 1722 - 1725, http://dx.doi.org/10.1111/jpc.16202

Bye AME; Le Marne FA; Beavis E; Macintosh R; Nevin SM; Palmer EE; Sachdev R; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope', Journal of Paediatrics and Child Health, 58, pp. 1726 - 1728, http://dx.doi.org/10.1111/jpc.16187

Palmer EE; Sachdev R; Beavis E; Macintosh R; Le Marne FA; Nevin SM; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty', Journal of Paediatrics and Child Health, 58, pp. 1718 - 1721, http://dx.doi.org/10.1111/jpc.16165

Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022

Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971

Ng EWM; Le Marne F; Sinclair KG; Lorentzos MS; Waak M; Deuble N; Georgeson T; Rao A; Rikhi S; Mallitt KA; Bye A, 2021, 'Evaluation of an educational video providing key messages for doctors to counsel families following a first afebrile seizure', Journal of Paediatrics and Child Health, 57, pp. 198 - 203, http://dx.doi.org/10.1111/jpc.15171

Le Marne FA; Towns SJ; Gaskin C; Ho J; Baker R; Beavis E; Bye AM, 2019, 'Implementing a new adolescent epilepsy service: Improving patient experience and readiness for transition', Journal of Paediatrics and Child Health, 55, pp. 819 - 825, http://dx.doi.org/10.1111/jpc.14301

Banuelos R; Beavis E; Le Marne F; Rowe N; Gao Y; Menzies J; Farrar MA; Cardamone M, 2019, 'Factors Affecting the Efficacy, Tolerability and Compliance of Dietary Therapy for Epilepsy- Four-Years Experience', Neurological Case Reports, 2, pp. 1010 - 1010, http://www.remedypublications.com/neurological-case-reports-abstract.php?aid=4936

Le Marne FA; Butler S; Beavis E; Gill D; Bye AME, 2018, 'EpApp: Development and evaluation of a smartphone/tablet app for adolescents with epilepsy', Journal of Clinical Neuroscience, 50, pp. 214 - 220, http://dx.doi.org/10.1016/j.jocn.2018.01.065

Le Marne FA; McGinness H; Slade R; Cardamone M; Balbir Singh S; Connolly AM; Bye AME, 2016, 'Evaluation of an E-learning resource on approach to the first unprovoked seizure', Journal of Paediatrics and Child Health, 52, pp. 896 - 900, http://dx.doi.org/10.1111/jpc.13277

Conference Papers

Nevin S; Le Marne F; Beavins E; Macintosh R; Pamer E; Sachdev R; Nunn K; Bye A, 2024, 'Capturing interdisciplinary clinicians' psychosocial and psychological experiences providing care for children with severe neurogenetic conditions', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1811 - 1811, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024

Robertson E; Kelada L; Best S; Goranitis I; Pierce K; Grainger N; Nevin S; Macintosh R; Le Marne F; Beavins E; Sachdev R; Bye A; Palmer E, 2022, 'Too many questions, too little information: Supporting families who have a child with severe genetic epilepsy', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 325 - 326, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022

Conference Posters

Le Marne F, 2020, 'Co-developing psychological resources for families with genetic epilepsy', Virtual, presented at Human Genetics Society of Australasia, Virtual, 24 November 2020 - 25 November 2020

Ng E; Le Marne F; Sinclair K; Lorentzos M; Waak M; Deuble N; Georgeson T; Rao A; Rikhi S; Bye A, 2019, 'The evaluation of an educational video counselling key messages for doctors and families following a first afebrile seizure', presented at Epilepsy Society of Australia 30th Annual Scientific Meeting, 6th – 8th November 2019, 06 November 2019 - 08 November 2019

Macintosh R; Nevin S; Le Marne F; McGill B; Sachdev R; Wakefield C; Bye A; Palmer E, 2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019

Le Marne F; Butler S; Beavis E; O'Brien AM; Gill D; Bye A, 2017, 'Design and development of a novel App for adolescents with epilepsy', Perth, presented at Epilepsy Society of Australia 31st Annual Scientific Meeting, Perth, 01 November 2017 - 03 November 2017

Le Marne F; McGinness H; Slade R; Cardamone M; Balbir Singh S; Bye A, 2015, 'The first unprovoked seizure: validation of a newly developed e-learning resource', Adelaide, South Australia, presented at Epilepsy Society of Australia 29th Annual Scientific Meeting, Adelaide, South Australia, 21 October 2015 - 23 October 2015

Conference Presentations

Nevin S; Wakefield C; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer E; Nunn K, 2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021

Le Marne F; Butler S; Beavis E; O'Brien AM; Gill D; Bye A, 2017, 'Design, development and evaluation of an app for adolescents with epilepsy', presented at The Australian and New Zealand Child Neurology Society 6th Annual Scientific Meeting, Brisbane, QLD, 09 August 2017 - 11 August 2017

McGinness H; Le Marne FA; Slade R; Cardamone M; Bye A, 2015, 'The first unprovoked seizure: validation of a newly developed e-learning resource.', presented at The Australian and New Zealand Child Neurology Society 4th Annual Scientific Meeting, Melbourne, Australia, 26 August 2015 - 28 August 2015

McGinness H; Le Marne F; Slade R; Cardamone M; Bye A, 2015, 'The first unprovoked seizure: validation of a newly developed e-learning resource', presented at The Australian and New Zealand Child Neurology Society 4th Annual Scientific Meeting, Melbourne, Australia, 26 August 2015 - 26 August 2015

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