By Dr Sian K Smith

Book Chapters

Garvey G; Stoll L; Dhillon H; Kar G; Cunningham J; Penniment M; Shaw J; Halkett G; Baxi S; Sabesan S; Smith S, 2024, 'Developing an Indigenous Radiation Therapy Talking Book for Cancer Patients', in Indigenous and Tribal Peoples and Cancer, pp. 111 - 113, http://dx.doi.org/10.1007/978-3-031-56806-0_22

McCaffery KM; Sheridan S; Nutbeam D; Clayman M; Kelly-Blake K; Rovner M; Rovner D; Smith SK; Wolf M, 2012, '2012 Updated Chapter J: Addressing Health Literacy (Original Title: Using Plain Language).', in Nata RV (ed.), Progress in education, v. 18, Nova Science, New York, pp. 1 - 30, http://ipdas.ohri.ca/resources.html

Journal articles

Smith SK; Pryce H; O'Connell GB; Knibb RC; Greenwood R, 2025, 'Refinement and Validation of a New Patient-Reported Experience Measure for Hearing Loss (My Hearing PREM)', Health Expectations, 28, http://dx.doi.org/10.1111/hex.70225

Pryce H; Smith S; Burns O’Connell G; Hussain S; Straus J; Shaw R, 2025, 'The lived experience of hearing loss–an individualised responsibility', International Journal of Audiology, 64, pp. 365 - 373, http://dx.doi.org/10.1080/14992027.2024.2351037

Smith SK; O'Connell GB; Knibb R; Greenwood R; Hussain S; Shaw R; Straus J; Banks J; Hall A; Dhanda N; Noble S; Pryce H, 2024, 'Development of the First Patient-Reported Experience Measure (PREM) for Hearing Loss in Audiology Care—My Hearing PREM', Health Expectations, 27, http://dx.doi.org/10.1111/hex.70088

Smith SK; Pryce H; O'Connell GB; Hussain S; Shaw R; Straus J, 2024, '‘The burden is very much on yourself’: A qualitative study to understand the illness and treatment burden of hearing loss across the life course', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14067

Jackson C; Smith S; Aghasaryan A; Andreasyan D; Aregay AK; Habersaat KB; Hovhannisyan L; Bogdan IV; Chistyakova DP; Cilović-Lagarija Š; Colonescu S; Hajiyev J; Ilves A; Isahakyan A; Isahakyan S; Jusupov N; Kachkachishvili I; Kender E; Kjosevska E; Nielsen SM; Mazhnaia A; Oona M; Păunescu B; Šabanović H; Săndulescu AI; Vasilevska A; Warsi S; Yusifli E; Zamfirescu RG; Craig B, 2023, 'Barriers and drivers of positive COVID-19 vaccination behaviours among healthcare workers in Europe and Central Asia: a qualitative cross-country synthesis', Humanities and Social Sciences Communications, 10, http://dx.doi.org/10.1057/s41599-023-02443-x

Pryce H; Smith SK; Burns-OConnell G; Knibb R; Greenwood R; Shaw R; Hussain S; Banks J; Hall A; Straus J; Noble S, 2023, 'Protocol for the development and validation of a patient-reported experience measure (PREM) for people with hearing loss: the PREM-HeLP', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2023-075229

Pryce H; Smith SK; Burns-O'Connell G; Shaw R; Hussain S; Banks J; Hall A; Knibb R; Greenwood R; Straus J, 2023, 'Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: The HeLP study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-069363

Smith-Lickess SK; Stefanic N; Shaw J; Shepherd H; Naehrig D; Turner RM; Cabrera-Aguas M; Meiser B; Halkett GKB; Jackson M; Saade G; Bucci J; Milross C; Dhillon HM; Smith S, 2022, 'What is the effect of a low literacy talking book on patient knowledge, anxiety and communication before radiation therapy starts? A pilot study', Journal of Medical Radiation Sciences, 69, pp. 463 - 472, http://dx.doi.org/10.1002/jmrs.606

Morton K; Kohut K; Turner L; Smith S; Crosbie EJ; Ryan N; Grimmett C; Eccles DM; Foster C, 2022, 'Person-based co-design of a decision aid template for people with a genetic predisposition to cancer', Frontiers in Digital Health, 4, http://dx.doi.org/10.3389/fdgth.2022.1039701

Smith SK; Wiltshire G; Brown FF; Dhillon H; Osborn M; Wexler S; Beresford M; Tooley MA; Turner JE, 2022, 'You're kind of left to your own devices': A qualitative focus group study of patients with breast, prostate or blood cancer at a hospital in the South West of England, exploring their engagement with exercise and physical activity during cancer treatment and in the months following standard care', BMJ Open, 12, http://dx.doi.org/10.1136/bmjopen-2021-056132

Kaur R; McDonald C; Meiser B; Macrae F; Smith SK; Kang YJ; Caruana M; Mitchell G, 2022, 'The Risk‐Reducing Effect of Aspirin in Lynch Syndrome Carriers: Development and Evaluation of an Educational Leaflet', Advanced Genetics, 3, pp. 2100046 - 2100046, http://dx.doi.org/10.1002/ggn2.202100046

Smith SK; Dhillon HM, 2021, 'Recovering and rebuilding after COVID-19: What are the best ways to support medical radiation science students?', Journal of Medical Radiation Sciences, 68, pp. 339 - 341, http://dx.doi.org/10.1002/jmrs.553

Yen RW; Smith J; Engel J; Muscat DM; Smith SK; Mancini J; Perestelo-Pérez L; Elwyn G; O’Malley AJ; Leyenaar JAK; Mac O; Cadet T; Giguere A; Housten AJ; Langford A; McCaffery K; Durand MA, 2021, 'A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IDPAS)', Medical Decision Making, 41, pp. 870 - 896, http://dx.doi.org/10.1177/0272989X211020317

Muscat DM; Smith J; Mac O; Cadet T; Giguere A; Housten AJ; Langford AT; Smith SK; Durand MA; McCaffery K, 2021, 'Addressing Health Literacy in Patient Decision Aids: An Update from the International Patient Decision Aid Standards', Medical Decision Making, 41, pp. 848 - 869, http://dx.doi.org/10.1177/0272989X211011101

Shaffer VA; Brodney S; Gavaruzzi T; Zisman-Ilani Y; Munro S; Smith SK; Thomas E; Valentine KD; Bekker HL, 2021, 'Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards', Medical Decision Making, 41, pp. 897 - 906, http://dx.doi.org/10.1177/0272989X211011100

Willis AM; Smith SK; Meiser B; James PA; Ballinger ML; Thomas DM; Yanes T; Young MA, 2021, 'Influence of lived experience on risk perception among women who received a breast cancer polygenic risk score: ‘Another piece of the pie’', Journal of Genetic Counseling, 30, pp. 849 - 860, http://dx.doi.org/10.1002/jgc4.1384

Halkett GKB; Merchant S; Smith SK; O’Connor M; Jefford M; Aranda S; Schofield P, 2020, 'Supporting and preparing patients for radiotherapy: Patients’ and radiation therapists’ perspectives on their one-to-one consultations', European Journal of Cancer Care, 29, http://dx.doi.org/10.1111/ecc.13284

Muscat DM; Morony S; Nutbeam D; Ayre J; Shepherd HL; Smith SK; Dhillon HM; Hayen A; Luxford K; Meshreky W; McCaffery K, 2020, 'Learners' experience and perceived impact of a health literacy program in adult basic education: A qualitative study', Public Health Research and Practice, 30, http://dx.doi.org/10.17061/phrp29231909

Smith-Lickess SK; Woodhead T; Burhouse A; Vasilakis C; Smith S, 2019, 'Study design and protocol for a comprehensive evaluation of a UK massive open online course (MOOC) on quality improvement in healthcare', BMJ Open, 9, pp. e031973, http://dx.doi.org/10.1136/bmjopen-2019-031973

Woudstra AJ; Smets EMA; Dekker E; Broens THF; Penning J; Smith S; McCaffery K; Fransen MP, 2019, 'Development and pilot-testing of a colorectal cancer screening decision aid for individuals with varying health literacy levels', Patient Education and Counseling, 102, pp. 1847 - 1858, http://dx.doi.org/10.1016/j.pec.2019.04.029

Smith SK; Cabrera-Aguas M; Shaw J; Shepherd H; Naehrig D; Meiser B; Jackson M; Saade G; Bucci J; Halkett GKB; Turner RM; Milross C; Dhillon HM, 2019, 'A low literacy targeted talking book about radiation therapy for cancer: development and acceptability', Supportive Care in Cancer, 27, pp. 2057 - 2067, http://dx.doi.org/10.1007/s00520-018-4446-0

Quinn F; Smith SK; Dhillon HM; Gillham C; Craig A, 2019, 'What do radiation therapists know about health literacy and the strategies to improve it for patients? A qualitative study', Supportive Care in Cancer, 27, pp. 649 - 657, http://dx.doi.org/10.1007/s00520-018-4353-4

Schnitzler L; Smith SK; Shepherd HL; Shaw JM; Dong S; Turner RM; Sørensen K; Dhillon HM, 2019, 'What information is communicated by radiation therapists to patients during education sessions on the first day of treatment?', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.12911

McCaffery KJ; Morony S; Muscat DM; Hayen A; Shepherd HL; Dhillon HM; Smith SK; Cvejic E; Meshreky W; Luxford K; Nutbeam D, 2019, 'Evaluation of an Australian Health Literacy Program Delivered in Adult Education Settings.', Health Lit Res Pract, 3, pp. S42 - S57, http://dx.doi.org/10.3928/24748307-20190402-01

Muscat DM; Morony S; Trevena L; Hayen A; Shepherd HL; Smith SK; Dhillon HM; Luxford K; Nutbeam D; McCaffery KJ, 2019, 'Skills for Shared Decision-Making: Evaluation of a Health Literacy Program for Consumers with Lower Literacy Levels.', Health Lit Res Pract, 3, pp. S58 - S74, http://dx.doi.org/10.3928/24748307-20190408-02

Smith SK; Cai A; Wong M; Sousa MS; Peate M; Welsh A; Bettina M; Kaur R; Halliday J; Lewis S; Trevena L; Yanes T; Barlow-Stewart K; Barclay M; Meiser B, 2018, 'Improving women’s knowledge about prenatal screening in the era of non-invasive prenatal testing for Down syndrome – development and acceptability of a low literacy decision aid', BMC Pregnancy and Childbirth, 18, pp. 499, http://dx.doi.org/10.1186/s12884-018-2135-0

Fransen MP; Hopman ME; Murugesu L; Rosman AN; Smith SK, 2018, 'Preconception counselling for low health literate women: An exploration of determinants in the Netherlands 17 Psychology and Cognitive Sciences 1701 Psychology', Reproductive Health, 15, http://dx.doi.org/10.1186/s12978-018-0617-1

Sublette VA; Smith SK; George J; McCaffery K; Douglas MW, 2018, 'Listening to both sides: A qualitative comparison between patients with hepatitis C and their healthcare professionals’ perceptions of the facilitators and barriers to hepatitis C treatment adherence and completion', Journal of Health Psychology, 23, pp. 1720 - 1731, http://dx.doi.org/10.1177/1359105316669858

Hedelund Lausen L; Smith SK; Cai A; Meiser B; Yanes T; Ahmad R; Rowlands G, 2018, 'How is health literacy addressed in primary care? Strategies that general practitioners use to support patients', Journal of Communication in Healthcare, 11, pp. 278 - 287, http://dx.doi.org/10.1080/17538068.2018.1531477

Morony S; Lamph E; Muscat D; Nutbeam D; Dhillon HM; Shepherd H; Smith S; Khan A; Osborne J; Meshreky W; Luxford K; Hayen A; McCaffery KJ, 2018, 'Improving health literacy through adult basic education in Australia', Health Promotion International, 33, pp. 867 - 877, http://dx.doi.org/10.1093/heapro/dax028

Kaur R; Meiser B; Yanes T; Young M-A; Barlow-Stewart K; Roscioli T; Smith S; James PA, 2018, 'Development and pilot testing of a leaflet informing women with breast cancer about genomic testing for polygenic risk', Familial Cancer, 18, pp. 147 - 152, http://dx.doi.org/10.1007/s10689-018-0104-4

Willis AM; Smith SK; Meiser B; Ballinger ML; Thomas DM; Tattersall M; Young MA, 2018, 'Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk', Journal of Genetic Counseling, 27, pp. 1055 - 1066, http://dx.doi.org/10.1007/s10897-018-0223-y

Halliday JL; Muller C; Charles T; Norris F; Kennedy J; Lewis S; Meiser B; Donath S; Stark Z; McGillivray G; Menezes M; Smith SK; Forster D; Walker S; Pertile M; Amor DJ, 2018, 'Offering pregnant women different levels of genetic information from prenatal chromosome microarray: A prospective study', European Journal of Human Genetics, 26, pp. 485 - 494, http://dx.doi.org/10.1038/s41431-017-0084-0

Peate M; Smith SK; Pye V; Hucker A; Stern C; Stafford L; Oakman C; Chin-Lenn L; Shanahan K; Ratnayake Gamage N; Hickey M, 2017, 'Assessing the usefulness and acceptability of a low health literacy online decision aid about reproductive choices for younger women with breast cancer: The aLLIAnCE pilot study protocol', Pilot and Feasibility Studies, 3, http://dx.doi.org/10.1186/s40814-017-0144-9

Muscat DM; Morony S; Smith SK; Shepherd HL; Dhillon HM; Hayen A; Trevena L; Luxford K; Nutbeam D; McCaffery KJ, 2017, 'Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower-literacy learners', Health Expectations, 20, pp. 1393 - 1400, http://dx.doi.org/10.1111/hex.12580

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, 26, http://dx.doi.org/10.1111/ecc.12600

Smith SK; Nathan D; Taylor J; Van Gelder E; Dixon A; Halkett GKB; Milross C; Dhillon HM, 2017, 'Patients' experience of decision-making and receiving information during radiation therapy: A qualitative study', European Journal of Oncology Nursing, 30, pp. 97 - 106, http://dx.doi.org/10.1016/j.ejon.2017.08.007

Sublette VA; Smith SK; George J; McCaffery K; Douglas MW, 2017, 'Listening to both sides: A qualitative comparison between patients with hepatitis C and their healthcare professionals' perceptions of the facilitators and barriers to hepatitis C treatment adherence and completion', Journal of Health Psychology, 22, pp. 1300 - 1311, http://dx.doi.org/10.1177/1359105315626786

Willis AM; Smith SK; Meiser B; Ballinger ML; Thomas DM; Young MA, 2017, 'Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review', Clinical Genetics, 92, pp. 121 - 133, http://dx.doi.org/10.1111/cge.12868

Rowlands G; Shaw A; Jaswal S; Smith S; Harpham T, 2017, 'Health literacy and the social determinants of health: A qualitative model from adult learners', Health Promotion International, 32, pp. 130 - 138, http://dx.doi.org/10.1093/heapro/dav093

Rowlands G; Shaw A; Jaswal S; Smith S; Harpham T, 2017, 'Health literacy and the social determinants of health: a qualitative model from adult learners.', Health Promot Int, 32, pp. 130 - 138, http://dx.doi.org/10.1093/heapro/dav093

Schnitzler L; Smith SK; Shepherd HL; Shaw J; Dong S; Carpenter DM; Nguyen F; Dhillon HM, 2017, 'Communication during radiation therapy education sessions: The role of medical jargon and emotional support in clarifying patient confusion', Patient Education and Counseling, 100, pp. 112 - 120, http://dx.doi.org/10.1016/j.pec.2016.08.006

Muscat DM; Shepherd HL; Nutbeam D; Morony S; Smith SK; Dhillon HM; Trevenal L; Hayen A; Luxford K; McCaffery K, 2017, 'Developing Verbal Health Literacy with Adult Learners Through Training in Shared Decision-Making.', Health Lit Res Pract, 1, pp. e257 - e268, http://dx.doi.org/10.3928/24748307-20171208-02

Muscat DM; Shepherd HL; Morony S; Smith SK; Dhillon HM; Trevena L; Hayen A; Luxford K; Nutbeam D; McCaffery K, 2016, 'Can adults with low literacy understand shared decision making questions? A qualitative investigation', Patient Education and Counseling, 99, pp. 1796 - 1802, http://dx.doi.org/10.1016/j.pec.2016.05.008

Smith SK; Sousa MS; Essink-Bot ML; Halliday J; Peate M; Fransen M, 2016, 'Socioeconomic Differences in Informed Decisions About Down Syndrome Screening: A Systematic Review and Research Agenda', Journal of Health Communication, 21, pp. 868 - 907, http://dx.doi.org/10.1080/10810730.2016.1177145

Smith SK; Yan B; Milross C; Dhillon HM, 2016, 'Radiation therapy for people with cancer: what do written information materials tell them?', European Journal of Cancer Care, 25, pp. 675 - 685, http://dx.doi.org/10.1111/ecc.12366

Muscat DM; Smith S; Dhillon HM; Morony S; Davis EL; Luxford K; Shepherd HL; Hayen A; Comings J; Nutbeam D; McCaffery K, 2016, 'Incorporating health literacy in education for socially disadvantaged adults: An Australian feasibility study', International Journal for Equity in Health, 15, http://dx.doi.org/10.1186/s12939-016-0373-1

McCaffery KJ; Morony S; Muscat DM; Smith SK; Shepherd HL; Dhillon HM; Hayen A; Luxford K; Meshreky W; Comings J; Nutbeam D, 2016, 'Evaluation of an Australian health literacy training program for socially disadvantaged adults attending basic education classes: Study protocol for a cluster randomised controlled trial', BMC Public Health, 16, http://dx.doi.org/10.1186/s12889-016-3034-9

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